Category Archives: Special Needs

Citizens Aren’t Powerless to Prevent Atrocities

I’ve known Adam Lanza too. (He isn’t my son.) He had a different name, but the same profile. We’ve all met these people. They live in every community. And it’s not too late to stop them.

They are too disabled to hold a job. Their disability doesn’t lie in their limbs, but in their minds. They live with their parents, or in a group home, have no friends, and no reason to leave the house.

This is not the picture of a happy life. Shunned by society, they have only their family, or hired caretakers, who may be very sick of them. Just think about how you feel after a week with your parents. Then multiply that by 1,040. That’s how many weeks Adam Lanza spent with his mother and almost nobody else, from what it sounds like.

The solution proposed by experts and amateurs alike: Adam Lanza, and Jared Loughner, and the other mass murderers were mentally ill. They needed help, from mental health professionals.

Adam Lanza did need help. As my brother said on the phone yesterday, “six-years-olds draw hearts and want attention. They have nothing to give but love. Anyone who would kill them…it’s sick.”

It’s heinous. And such indiscriminate violence must be borne out of great pain. When animals and humans are in a great deal of pain, their cognitive functioning is not optimal. High emotions block rational thinking. Targets are missed. Social cues are misread. They lash out or in, hurting others indiscriminately, or hurting themselves. A mental health professional can help a person identify this behavior. He or she can prescribe medication to improve functioning, teach coping skills, and refer the client to community resources and activities. But here’s what mental health professionals can’t do: they can’t reduce the pain.

The pain that comes from isolation and dysfunctional relationships with family members who many disabled people depend upon for survival will not go away through talk therapy alone. A mental health professional is not a friend. And being a mental patient is not a role that carries esteem. Humans need friends, esteem, and activities that offer a sense of achievement in order to stay healthy.

The Adam Lanzas and Jared Loughners of the world needed to be part of society in order for that pain to go away. They needed to have roles that prevented them from getting so sick. They needed to be welcomed somewhere, and to do something well. A mental health worker could have helped them find those things if society had provided them.

There are plenty of roles for disabled people: bagging groceries as a volunteer, discussing American presidents with old folks in an assisted living facility, walking the neighbors’ dogs, weeding gardens for a landscaper, playing chess at the corner store or park, participating in synagogue or church events, writing fan fiction for a thriving fan fiction community, or working with a group of Linux users to create a new Java-based widget platform.

When society obsesses over the need for mental healthcare for the Adam Lanzas of the world, it passes the buck. It undermines the importance of social acceptance for disabled people. It’s like a person with a messy house who throws a banana peel on the floor and screams, “I need more housecleaners!”

If we keep our houses cleaner, we won’t be dependent on housecleaners.

We can welcome disabled people and offer them small roles that get them out of the house or into a social milieu. When they apply for jobs at our businesses, we can give them small, manageable tasks once a week. When they apply to join our synagogues but can’t afford the membership fee, we can waive it. When they apply to join our quilting group, bowling team, or gardening club, we can accept them, even if they make us slightly uncomfortable. We can greet them with kindness and conversation when we encounter them in public or at their homes.

If having disabled people around frightens you, that’s understandable. Check with their family members, their doctors or therapists before inviting them into your world. We do that with employees for good reason. But don’t categorically reject them. Because that’s what has occurred in the case of Adam Lanza and Jared Loughner, and the result is atrocious.

We can cry out for more psychologists, more welfare spending on mental health services, do nothing ourselves, and accept the collateral damage. Or we can step up and be citizens. Those are the choices.

Emily Meehan is a writer and a children’s advocate who is producing a feature film she wrote after spending six months working with foster children living in a Northern California group home. Learn more about the film here.

 

Posted in Altruism, Behavior, Child Advocacy, Education, Family, Loss, Sharing, social awareness, Special Needs, Teaching Compassion, Theory, Villagers | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Is Giftedness Always a Gift?

Brooke:  Today I took my 4-year-old in for his annual checkup, and some issues we’ve had recently regarding his behavior (he’s been argumentative and extremely difficult) came up. As the pediatrician and I discussed it further I also brought up the fact that he’s been bullied at preschool lately.

           And then my son started reading all the signs in the room. He’d learned all the letters of the alphabet by the time he was 18 months old; he read his first words right before his second birthday and was reading sentences– sometimes a lot of them– by three. Now, at night when we put him to bed, half the time *he* reads *us* his bedtime stories.

          I never wanted to slap the gifted label on him– I just wanted to think of him as a regular kid who happened to read early. But after this office visit, things are starting to make sense.  The pediatrician looked me in the eye and said, “Your son is gifted, and it can be a really hard thing for both of you.” He advised me to find a preschool for gifted kids and get him in as soon as possible He also told me that a lot of the time younger gifted kids have behavioral problems because while they might be older intellectually, they’re still young emotionally.

           It’s a lot to process. Of course I’ve been combing the internet, trying to put all the pieces together. Of course everyone wants to have a kid who’s talented and smart, but whatever is going on with my son comes with a lot of baggage for me (unresolved childhood issues) and quite a few downsides for him. He gets bored easily. It’s hard to keep him stimulated. He doesn’t have any symptoms of ADD/ADHD, but he’s very active.  He needs less sleep than other kids his age.  

           It’s exhausting.  It’s also a lot of pressure: what if he just hears how gifted he is over and over again and never learns that he has to work hard to accomplish his goals? What if being gifted means he’s doomed for a life of neuroses and anxiety and overanalysis? Is it really official if the pediatrician says so, or has it been official all along?

Melissa:  My child is “gifted” you say feeling a little embarrassed because you don’t want to feel like you are bragging. The truth is that it is not always something to brag about. The difficulties that come along with finding engaging education, interesting yet age appropriate social interaction and dealing with the emotional challenges of being different from peers is not always something others consider when you say your child is “gifted”. They usually just look at you like you must be so fortunate.

Giftedness is especially difficult for schools to deal with because of the lack of resources to differentiate the curriculum enough to engage the gifted child. So many times the focus of the resources that are available go to the children that are not meeting the academic benchmarks. Parents of gifted children are in a constant struggle to help get their child’s academic needs get met and often times the schools can not provide a viable solution. This leaves it up to the parents to find engaging activities for their child.

The problem is that if the academic needs of the gifted child are not being met, your child can become bored and be mistaken for having an attention or behavior disorder. It seems like every time you approach someone about your child’s special “gifted” needs, they look at you as if you should feel lucky, not complaining. Little do they know there are very high rates of depression and suicide among gifted teens because of lack of challenge, boredom and depression.

It can become a real struggle for a parent to not have support and understanding from the public educational system. When you turn to private education for your gifted child it usually comes with a huge price tag and many times they can’t come up with a great solution to meet the needs of the gifted child either.

Not only do gifted children become frustrated because they can not be fully engaged in school, but also because their minds are running much faster than their maturity level. So many times the gifted child has trouble relating to peers because their thought processes are of a much older age. This can become confusing because the child is drawn to an older group, but many not be as emotionally mature. They can really struggle to figure out where they fit in.

It is a very tough situation for parents to help their child navigate and many times you become the target of your gifted child’s emotional distress. It may come out as anger, frustration, aggressiveness, or depression. Many times parents feel at a loss when trying to maintain calmness in the midst of all these emotions. Sometimes you may not even understand why the emotional outbursts are happening. The truth is that usually the child doesn’t know how to articulate it either.

It is important to understand that there may not be a particular reason, but it may be an accumulation of many things. For gifted children it is important to be patient and empathic but at the same time to set boundaries so they feel safe. Since their minds are usually far more developed than their emotions, it is your job to contain them. This is sometimes an emotionally draining  job for parents especially when everyone around you just thinks that having a gifted child is a gift.

Posted in Ask the Experts, Behavior, Development, Education, Parenting Advice, School, Special Needs | Tagged , , , , | 2 Comments

Stop and Smell the Roses: Lessons learned from a child with Special needs

We live in a fast paced world.  You can get everything from coffee to your dry cleaning through a drive-thru window.  We live in a high tech super speed society.  We put the same fast paced demands on our children.  We want them to walk early and talk early.  We want them to be the smartest and the fastest child in preschool.  We want them to learn to read before they enter kindergarten.

When you have a child with special needs all the normal timelines don’t apply to you.  You quickly realize that the words fast and first don’t fit into your vocabulary.

What you do learn is this:   you learn to STOP AND SMELL THE ROSES. When you have to wait years for your child to walk, you appreciate all the little baby steps along the way.  When you have to wait years and years for your child to speak their first words, you learn to appreciate every utterance made along the journey.

In the special needs world I cherish everything that my son does.  In the typical world the things that I praise him for are already expected for a child his age.  I don’t mind; they are all victories to me.

The greatest lesson I have learned is to stop and smell the roses.  I have learned to slow down and appreciate all the things that my son does.  All of his accomplishments are celebrated be they big or small.  I have learned to celebrate the little things in life.

I am not worried if my son will win the race, I am just happy if he gets out and runs.

 I don’t care that my son didn’t walk until he was 2 years old, because he walks now.

 I don’t care if my son can’t tie his own shoes; at least he has two feet to put them on.

 I don’t care if my son didn’t’ speak clearly until he was 3, he can talk just fine now.

 I don’t care if my son doesn’t have perfect vision, because he looks great in his glasses!

You know what I do care about?

I care about living in the moment with my child. This is what my son does without even trying.  It is such a beautiful quality that he possesses.  He lives for the moment.  He isn’t thinking to himself about whether or not he could ride that bike last week, he is just thinking about peddling his feet right now.  He isn’t thinking about the words he couldn’t articulate last week.  He is just thinking about sounding them out now,  placing his tongue exactly where it needs to be in his mouth and sounding out that utterance for his therapist.

If you talk to a thousand special needs parents they would all tell you the same thing.   Enjoy your child; enjoy the little things, slow down…STOP TO SMELL THE ROSES.  These are all lessons we have learned from our “exceptional” children.

Posted in Behavior, Development, Gratitude, Parenting Advice, Special Needs, Villagers | Tagged , , , , | 4 Comments